hi i suffered me/cfs and fybromyalgia for 20 plus yrs now. Diagnosed fully with 6 week stay and tests daily. Other illness also but these are main ones.
I find it difficult to explain to others that havent heard of it before(they usually think ms)i do use a wheelchair. My trusty wheelybug i call it.I get depressed alot and have not been able to chat with other disabled people. Lack of confidence and bad care did not help, though it is sorted now, only wish that the illness could go as quickly. I am divorced , my children grown now, my life well i dont know anymore, just can only go from day to day. Fed up of the do gooders that say sorry to me when out, i dont want that i am me that has a brain and a body. As long as i have had this illness i still am having trouble at trying to pace myself. At times i think often its the ones that are suffering are possibly the only ones that can understand on this planet. Would like to join if possible and hopefully make some friends on this site/forum if you dont mind. Thanks

i have tried many hobbies, still go back to them. card making, jewellry, draw, quizzes, internet browsing for something interesting...many others too but forgot. lol