Degenerative Disc Disease; Nurological Plexopathies; Chronic Regional Pain Syndrome; Fibromyalgia; Chronic Fatigue; Frontal Lobe Atr

I am Julie and have been Chronically ill for the past 10 years. In reality it has been 40 years exactly however I have fought through my conditions until one day I could not get out of bed literally.

My journey started with CRPS (loss / atrophy of a limb) after fracturing my arm throwing my judo instructor. The arm was set in a cast and literally was dead when taken out. At the age of 11 yo CRPS was not known so after international hand seminars horrific tests and proding it was decided to amputate my arm at 15 yo. I flipped and said no one was cutting my arm off. I ran away from home never to return. Yes I was determined and adamant.

Fortunately for me I regained the use after seeking out leading Natropath Dorothy Hall who through iridology noticed my whole nervous system had been damaged. After exploring from pre birth, after birth where I stopped breathing a few times, it was possible the lower nervous system was damaged. At 18 months old I had a rock bigger and heavier than a house brick dropped on my head from 1 1/2 stories of a house, splitting the central nervous system. When I threw a fully grown man in a judo competition and fractured my arm, the peripheral nervous system was damaged.

With a lot of massage, chiropractic as well as acupuncture I slowly regained use of the arm. Sadly it does decide to want to give up at times.

I had several more issues through sporting injuries where I have lost the use of both legs several times and again extensive rehabilitation of my choosing not doctors I gradually regained the use after years of hard work. My heart goes out to CRPS suffers, there is still so little know however what I so far have deduced is it generally happens in teens, sporty / active with intense muscle structures throughout the body.

My story get quite complicated however as I said I litreally could not get out of bed one day. I was a senior project manager and had been living away on site. One day I was good the next that was it and I have been declining since.

If you would like to know more I am happy to share the time line after 2 years full time in hospital (yuck).

Degenerative Disc Disease - Nurological Plexopathies - CRPS - Fibromyalgia - Chronic Fatigue (however I suspect Adrenal Fatigue or both) - Frontal Lobe Atrophy

I sleep 85 to 90% due to pain and / or fatigue. I live with a scale of 13 pain and reckon I will let go if I ever get to 15. People with Chronic Pain understand there is no too 10 in pain rating.

I am isolated most of the time. I lost my mum, nan and brother the first year of my illness and I feel I have no friends left now. Yes I connect on Facebook with friends but they don't get it. On a good day I am up 2 - 3 hrs max. I fight to stay longer but am generally put to bed because I evidently change from bright refreshed and bubbly to a dreadful pail. I can walk about 20 metres aided if lucky but am wheelchair bound the rest of the time.

I can lose the use of my limbs suddenly fromantic days to years. Right pain not being able to lfit or use arms to make a cuppa tea.

My former husband up until this year has been there to a degree 1 day a week but usually drunk. He is a chronic gambler so I have had to protect myself in paying my mortgage as I will need to go into care one day and this is the only asset I have that I can sell so at least I can have reasonable care.

Life has been a roller coaster and generally I am very positive however recently I feel I have just been hit too many times by people's selfishness and insecurities which has left me exhausted.

I am a little sad right now however I hope to change that statement soon when I pick myself up again and dust off.

I have read so many stories on here which is why I would like to join. I think you are all amazing.

Now I know I am wonderful and would love to touch base with so many of you however if you do send a message and vice versa please do not be offended if there is a slow reply. As I said sleep and losing the use of my hands is a pain in the butt. Rest assured though I will reply.

In saying that I tried a while ago to join a disabled site and was sexually assaulted with words. I became so distressed that it has taken mevery a long time to try again. I did report but was told it was a free site. I was so angry that was allowed and distressed with what was said particularly from a person who would not even know the struggles most of us go through.

Thank you for reading and I hope to make some real and lasting friends.

Julie

Reading; talking when able; people over; taking my puppy for a walk by the water; helping others if I can; always have a project on go however everything pends my health and timeline.

All

Les Miserable; Into the Wild

Too ill too watch

Too many to name one that has always stuck out is Strong Medicine, Alex Haley

My Nan