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Growing up with Epilepsy

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17 years 3 weeks ago #114 by
Growing up with Epilepsy was created by
when i first started have epilepsy as a young girl my life was being turned around my life had to change and this word epilepsey was still in the mid 1970s a word to be quiet,in my experiances once the word got out i was at the age of 8yrs old found myself being kicked out of school,they said they didnt want any responceability of an epileptic child,some of the school staff seemed to still carry that stigma that we who suffer fits are evil or a witch,

i grew up never learning how to swim or even had my first bike,i was not to have a bath alone i had to be watched,just imagin how this would be for other children then and now although the stigma has now gone a thing of the past most of us still experiance something in their lives were they have or feel they have been miss judged and unfairly mistreated,tell us of your experiances and how you felt during those times,did you feel pushed out not belonging or other,

if anyone has a story or problem regarding how to make life easier for a sufferer of epilepsy please get intouch,

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15 years 5 months ago #13326 by
Replied by on topic Re:Growing up with Epilepsy
I GREW UP WITH EPILEPSY TOO SICE 14 IV'E HAD EPILEPSY
GRAND MALS TO PETET MALS
THERE WAS A TIME I WAS TOLD I WAS POSESED BY DEMOMS
HOW DO YOU LIVE GROWING UP WITH EPILEPSY
JUST ONE DAY AT A TIME !
THATS HOW YOU GO ON
BEAR

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15 years 5 months ago #13838 by
Replied by on topic Re:Growing up with Epilepsy
Growing up with epilepsy
(I FOUND THE LESS STRESS THE LESS SEIZURES )
(I LEFT MY STRESS BEHIND BE IM HAVING FEWER SEIZURES)

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13 years 3 months ago #33002 by
Replied by on topic Re:Growing up with Epilepsy
At first with all of us we are all watched doing everything
I WAS TOLD. I WAS POSSESD BY DEMONS BECASE MY FAMILY DID NOT
KNOW WHAT TO DO . WAS NOT DEMONS WAS EPILEPSY I MOVED FROM
RENO NEVADA TO COOSBAY,OREGON
MOVE RELAXED CALMER LESS SEZURES
MORE STRESS MORE SEZURES
BEAR

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13 years 3 months ago #33003 by
Replied by on topic Re:Growing up with Epilepsy
I HAVE ALLWAYS HAD BIKES I LEARNED HOW TO BUILD BIKES
FROM MY BROTHER . HE NEVER SAID ANYTHING BUT I WATCHED HOW TO DO
IT SO LEARNED .I REBUILT MY BACK BRAKES YESTERDAY I HAVE NOT
HAD BRAKES FOR ABOUT A MONTH NOW
BEAR

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13 years 3 months ago #33021 by Pinky2
Replied by Pinky2 on topic Re:Growing up with Epilepsy
The story with me is I was born with CP meaning Cerebral Palsy. Mine is mild so I'm able to do most things for myself. At age 15 I was swimming in the pool where we lived & the wall of the pool was on my left side. From what people tell me that I hit the wall with my head just above my ear. That was my first seizure. I really never had the bad ones. So now with 2 disabilities it was hard for a teenager then. As time went on I noticed I had a problem with my hearing on the left side. So I got a hearing test & found out from when I hit my head I damaged either my inner or my middle ear. I lost about 75% to 80% hearing. I now wear a hearing aid.
It's not that hard if you just take care of yourself first!

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