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Re:neurosarcoidosis 12 years 5 months ago #2888

  • poshpaws
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ignirence is bliss

(so is a shampoo induced hangover)

.hic<

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Re:neurosarcoidosis 12 years 5 months ago #2905

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Mark..few points youve raised ,Ive been through.....I did get tired on injection days until my body started to get used to it (about three weeks so stick with it)
As for the shortness of breath,my condition is similar ..and you must remember that Enbril will reduce your resistance to infections.I picked up a cold and chest infection before Xmas..the cold went but the chest infection left me with lung water retention (felt as if I was suffocating when laying in bed and made me short of breath when walking)GP prescribed Water Dispersing tablets and they do help.
Stick with the injections,my friend,as you should feel the benefits soon xxx;)
By the way..your also an example of the strength we have....stay in the fight zone xxxxx;)<br><br>Post edited by: tonypark, at: 2008/05/25 13:54

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Re:neurosarcoidosis 12 years 5 months ago #2911

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one thing ive noticed with sarcoid...is that it seems to love those who lead a really full life......it seems to latch on to that zest for living and wants a part of it too.........this is a truly unmedical approach to it.........but i think its a valid observation.



it seems to draw so much energy from us....this has to be respected....it is really important to try to minimise stress (mental and physical) ........ and to get as much rest as possible, particularly when its active.

this often isnt easy to do......lifes day-to-day demands being what they are........but it should be seen as a priority.





on the issue of fighting infection, i found taking slow release Vit C...500mg daily works for me, and being a water soluble vitamin, it is not stored in the body,any excess being excreted in the urine.




mark, for yr sleep apnoae, are you using one of those machines that help you breath at night? .....they seem to be used a lot in the usa, certainly more common in usa households than here in the uk.




xx suzan xx....:)

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Re:neurosarcoidosis 12 years 5 months ago #2921

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Mark..Ive also got an inhaler (hope on a temp basis) had to use it on flight back from Rhodes when plane went above 30,000 feet .......

And Ducky...your just as much an inspiration to us xxxxx;) (I must stop takling those NICE tablets ) xxxxB)

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Re:neurosarcoidosis 12 years 4 months ago #3709

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And Ducky...your just as much an inspiration to us xxxxx;) (I must stop takling those NICE tablets ) xxxxB)[/quote]

:blush: that is nice B) B) B)
this aspirant will keep aspiring to inspirate you all;)
:blink: after all those aspires need asprins

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Re:neurosarcoidosis 12 years 4 months ago #3731

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See....say something nice and slung back in your face like a large turd . xxxxxxxxx:laugh: :laugh: :laugh: :laugh:

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Re:neurosarcoidosis 12 years 4 months ago #3816

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excuse me:blink: .. i was being nice and polite... I was brought up to be a lady and show curtisey and manners at all times;).. some times they are put to the test:pinch:

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Re:neurosarcoidosis 12 years 4 months ago #3835

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ducky wrote:

excuse me:blink: .. i was being nice and polite... I was brought up to be a lady and show curtisey and manners at all times;).. some times they are put to the test:pinch:


Exactly....now whos upset you ???? xxxxxx;) :laugh: :whistle:

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Re:neurosarcoidosis 12 years 4 months ago #4095

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:huh: nobody ppl on site are very nice to me thank god:laugh:

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Re:neurosarcoidosis 12 years 4 months ago #4115

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Just point out the offending object..Ill remove it xxxx;) :whistle:

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Re:neurosarcoidosis 12 years 4 months ago #4748

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:blink: :huh: :ohmy: :blush: :dry: :S :pinch: xxxx

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Re:neurosarcoidosis 12 years 4 months ago #4757

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Oh..so its not this thing here then xxxx;) :blink: :whistle: :whistle: :whistle:

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